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Friday, April 15, 2011
...in the waiting room...
We got here at 11:00 this morning. Poor dude hasn't eaten since 8:30 last night. He was scheduled as the second case of the day, and of course as we all know, procedures all run longer than expected. We were supposed to check in at 11 and he was going under about 1. Well we got called in at 1:30 and Dude went back at about 3.
He has been cracking us up all morning! Sometimes I get so caught up in being the mom and teaching him what's right and wrong that I miss how fun he is. I lobe this little guy. I hope that I get half the strength that he has. :)
He has been cracking us up all morning! Sometimes I get so caught up in being the mom and teaching him what's right and wrong that I miss how fun he is. I lobe this little guy. I hope that I get half the strength that he has. :)
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Thursday, April 14, 2011
Tomorrow...
Today we spent the day in Portland. We ate gellato at Bridgeport, spent some good quality time at borders getting books to read and looked around some other shops. We ate lunch together, and had some good laughs. After the docs, we met up with "Timmy" and had dinner at The Cheesecake Factory. All in all, it was a wonderful day before the craziness we will live tomorrow. At dinner, Dominic was SO funny! We decided that he could have anything he wanted since he won't be able to eat until he wakes up tomorrow. So we told the server that it was his birthday! They brought him ice cream AND this little glass full of fudge and whipped cream. He was definitely was chocolate wasted by the end of the night :)
Dominic my love: be brave tomorrow. There are so many people praying for you and sending you love! It's just another step in our crazy lives. I love you my sweet sweet boy!
Dominic my love: be brave tomorrow. There are so many people praying for you and sending you love! It's just another step in our crazy lives. I love you my sweet sweet boy!
Tuesday, April 12, 2011
The Time is Here
I'm up still, just getting ready for the last leg of our adventure. It feels like this week was so far away, and now here it is. This is the week that we will be scheduling Dominic's last surgery. Friday morning we will be checking in at Doernbecher/OHSU for a Cardiac Cath. There will be lots of yawns, and hopefully eating some good Portland food, catching up on a good book and maybe a little catching up on some much needed business attention.
For me, the key to getting through anything and everything I have been through is to keep busy and laugh! I'm a HUGE believer in God, and no matter what I do, or think, or say to anyone, in the end it's Him that makes the decisions. I just wait here and stay as positive as I possibly can because without that, I have nothing. So I make friends with my Doctors and Nurses. I cuddle with my Dude. I watch kid shows on TV. I laugh when I want to cry and I keep my mind busy when it could wander and make me worry.
I thank God every single day for everything he has given me. My wonderful family and especially the strength of my beautiful little boy. Without him I would be so lost in this crazy world. I'm not sure I could get any luckier.
Tonight after dinner, and after sticking fries in our noses, Dominic asked us what was going to happen at the "Hostable" on Friday. When we explained it to him he says "OH! Well that's not so bad!! They aren't gonna give me that big scary owie?? hmmm okay!" And it reminded me that that is the type of attitude we needed to have.
Dominic my love, I'm so proud of you for your love, your strength, and your laughter through everything that you have seen in your little life! I love you!
Monday, March 7, 2011
Dominic at Three Days Old.
Dominic, my love,
You have inspired me in so many ways. In your short little life you have showed me how to be brave and strong better than anyone could. You have taught me how to be compassionate and loving to those that I might not have looked twice at before. You have taught me to have more fun than I have ever had with less than I've ever had. I thank God for you every single minute of every single day! I love you!
By day three of this precious baby's life, I had the hardest day until that point. In order for the doctors to see what needed to be done to little Dude's heart, they needed to perform a Cardiac Catheterization. Basically, they take a catheter and string it through a vein either in your groin or in your neck until it gets to your heart. From there, they can inject dyes to check blood flow, or they can insert stints. They can even dial ate veins and vessels as well as coil them off. With this test, we will know exactly what our little hero's heart actually looks like and how it functions. The test went the best it could. They got all the info they could and at the next cardiologist meeting they would present him and figure out the best plan of action.
All of the news we got, was good. The procedure went well. Everyone was happy. I was forewarned that when I saw my baby, his right leg would be slightly dusky compared to the rest of him. It wasn't bad at all. He was beautiful and peaceful sleeping in his little incubator in the DNCC. Then it happened. He started to wake up. He hurt my poor baby and all I could do was sit an watch. He screamed and screamed and I couldn't pick him up. I held his hand and tears streamed down my face and all I could do was pray. I just wanted to hold my poor child as he laid there is pain. This is when it actually hit home, my baby wasn't like all the others I had held before, and this wouldn't be the last time that my poor baby would cry and there would be nothing that I could do to comfort him. This is when I learned courage because if I wasn't strong for him, who would be? Thanks to my Lord above... I was.
Dominic my love, you are my little hero!
You have inspired me in so many ways. In your short little life you have showed me how to be brave and strong better than anyone could. You have taught me how to be compassionate and loving to those that I might not have looked twice at before. You have taught me to have more fun than I have ever had with less than I've ever had. I thank God for you every single minute of every single day! I love you!
By day three of this precious baby's life, I had the hardest day until that point. In order for the doctors to see what needed to be done to little Dude's heart, they needed to perform a Cardiac Catheterization. Basically, they take a catheter and string it through a vein either in your groin or in your neck until it gets to your heart. From there, they can inject dyes to check blood flow, or they can insert stints. They can even dial ate veins and vessels as well as coil them off. With this test, we will know exactly what our little hero's heart actually looks like and how it functions. The test went the best it could. They got all the info they could and at the next cardiologist meeting they would present him and figure out the best plan of action.
All of the news we got, was good. The procedure went well. Everyone was happy. I was forewarned that when I saw my baby, his right leg would be slightly dusky compared to the rest of him. It wasn't bad at all. He was beautiful and peaceful sleeping in his little incubator in the DNCC. Then it happened. He started to wake up. He hurt my poor baby and all I could do was sit an watch. He screamed and screamed and I couldn't pick him up. I held his hand and tears streamed down my face and all I could do was pray. I just wanted to hold my poor child as he laid there is pain. This is when it actually hit home, my baby wasn't like all the others I had held before, and this wouldn't be the last time that my poor baby would cry and there would be nothing that I could do to comfort him. This is when I learned courage because if I wasn't strong for him, who would be? Thanks to my Lord above... I was.
Dominic my love, you are my little hero!
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